FSMA Ukraine (Kharkov's Charitable Fund "Children with spinal muscular atrophy")

FSMA Ukraine

FSMA Ukraine

CSMA is an association for patients with Spinal Muscular Atrophy, and their families. Spinal muscular atrophy is the name given to a group of inherited disorders that result in progressive deterioration of the spinal nerves controlling voluntary movement.

'Children with SMA' ( CSMA) is a voluntary not for profit organisation dedicated to promoting and supporting research, offering support to families affected by Spinal Muscular Atrophy and educating the public. Goals include:- help with treatment and research into spinal muscular atrophy, financial grants for research and clinical tests.

CSMA was founded in 2004 by a group of concerned parents. CSMA enables families to share information, support and resources through its networking programme.

Contact Details

Contact Name(s): Vitaliy Matyushenko
Telephone: +38 050 364 0673 (cellular)
Facsimile:  
Postal Address:

Matyushenko Vitaliy,
Nikitina street 13, Flat 15
Kharkiv
Ukraine
61005

Email Address:
Web Site:

http://www.csma.org.ua

 

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