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CSMA is an association for patients with Spinal Muscular Atrophy, and their families. Spinal muscular atrophy is the name given to a group of inherited disorders that result in progressive deterioration of the spinal nerves controlling voluntary movement.
'Children with SMA' ( CSMA) is a voluntary not for profit organisation dedicated to promoting and supporting research, offering support to families affected by Spinal Muscular Atrophy and educating the public. Goals include:- help with treatment and research into spinal muscular atrophy, financial grants for research and clinical tests.
CSMA was founded in 2004 by a group of concerned parents. CSMA enables families to share information, support and resources through its networking programme. |