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The Jennifer Trust is the UK support group for people with Spinal Muscular Atrophy and for their families.
Since 1985 the Trust has grown to have more than 1,500 member families, and is in contact with other groups and families all round the world. This pool of knowlege and experience is available through the JTSMA website and in all the Trust's activities.
The JTSMA funds research - both therapy based - looking for a cure and management to maintain and / or improve the health and well being of individuals in key areas such as respiration. |